“People with Scleroderma live with pain every day so two weeks of pain is nothing.”
That’s what Tamara Kennedy said of her upcoming 525 kilometre trek to raise funds and awareness about an auto-immune disease known as Scleroderma.
The Campbelltown resident only learned of the life-threatening condition when her mother, Tricia Noack was diagnosed with it last year.
Mrs Noack’s skin is hardening, her internal organs are struggling and there is no cure.
But this isn’t good enough for Mrs Noack’s family.
Husband Steve Noack, daughter Tamara Kennedy and son-in-law Andrew Kennedy are about to embark on a massive trek from Port Macquarie to Camden over two weeks – effectively 14 marathons in 14 days.
”There will be a lot of pain but it’s worth it,” she said.
“On our last walk we came across seven people who were living with Scleroderma and they were so proud to have us representing them.
“There is no cure but Scleroderma NSW are so close to a breakthrough in their research we want to help get them the funding to get there.”
The family will begin their walk on Saturday, June 16 and finish at Narellan Hotel on Friday, June 29.
“Everyone is invited to come down and see us there,” she said.
“We grew up in the area so I hope to see a lot of familiar faces when we get back to the Narellan Hotel.”
Mrs Kennedy said last year’s journey – from Narellan to Ariah Park in the Riverina – raised more than $30,000 for the cause and they hoped to raise a similar amount this year.
You can find out more information and keep up to date on the family’s progress at the Steps for Scleroderma Facebook page.