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 Super Will - watch the video 

Super Will - watch the video

08 Oct, 2008 11:10 AM
** Watch the video below **

MATT and Melanie Cullen hope every step they take on the five-kilometre Walk to Cure Diabetes this Sunday will be a step closer to finding a cure for the chronic disease that affects their little boy.

Already the Harrington Park couple have raised $9100 for the Juvenile Diabetes Research Foundation whose mission it is to find a cure for type 1 diabetes.

Their three-year-old son, Will ``Superman'' Cullen, was diagnosed with type 1 diabetes in May 2007.

``He got very sick all of a sudden,'' Mrs Cullen said. ``He'd been vomiting and we thought it was just a gastric bug.

``By that night we were in hospital and then Will was being transferred to Randwick.''

That was the start of Will's daily regime of needle pricks and multiple insulin injections to stabilise his often unsteady blood sugar levels that have at times fluctuated from 2 to 27.

Nine months later he received an insulin pump he has nicknamed ``Percy''.

The pump, attached to Will's body by a long piece of tubing inserted under the skin, delivers insulin around the clock and means he no longer needs injections.

The only time you'll catch a frown on Will's face is on ``set day'', when the Cullens have to replace the disposable infusion set where three days' worth of insulin is stored.

In a bid to raise money to find a cure for juvenile diabetes, the Cullens posted a four-minute video on YouTube called ``A brave little boy's story''.

The ``tear jerker'' movie gives an insight into Will's life and what his parents call the ``unrelenting demands of diabetes.''

The video tracks Will's life so far as a happy baby to the now boisterous toddler showing off ``Percy the pump'' which he has ``because I'm diabetes''.

Sixty of the Cullens' family and friends will join them on their Walk for Diabetes at Olympic Park. They'll don Superman style T-shirts bearing a W - for Will and for the team's name, Will's Warriors.

``We are Will's warriors in our fight against diabetes,'' Mrs Cullen said.

HOW TO HELP: To donate, go to http://walk.jdrf.org.au/NSW/MelanieCullen/ or search for Will's Warriors to see all of the team members. Donations are tax deductible.

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I am proud to say that Will is my yougest grandson and we are all encouraged by your interest and hopefully it will create more support. I tried to get Channel 7 Sunrise program to run the story but they did not reply, maybe you could get it on the TV and that would really get some support Thank you again
Posted by Ray Pershouse, 8/10/2008 1:49:17 PM
My son also has Type 1 Diabetes he has had it for over 12 years. As you will find out there is no support for Type 1. Its all there for type 2, we and many other parents tried for ages to get support finaly gave up as our kids out grew the cute stage where it is easier to funding for them. We came to realise that while there is money to be made in Insulin & other drugs no money is being spent on finding a cure. Hate to rain on on your parade good luck to Will & your family Diabetes just isnt trendy enough for media to really care.
Posted by homebody, 9/10/2008 1:40:21 PM
I have had diabetes for seven years and i am also on a minimed pump. great video. super cute kid.
Posted by Sara, 17/10/2008 1:46:46 PM
Children with Type 1 are absolutely little champs! Go Super Will! My son, Noah, is our Super kid and he himself believes himself to be just that! I disagree with 'homebody' in regards to there being no support for Type 1. Right from the start when Noah was diagnosed, just a few months after his 4th birthday, we have received absolutely fantastic support. Princess Margaret Hospital's diabetes team are wonderful people who do a marvelous job. We have constant phone support and regular clinic support. The endo team are professional and so efficient. I really cant praise them enough! I also believe that the focus on diabetes is also fantastic especially with all that the JDRF people do. They are actually working to find a cure. You can sign up for their updates on the amazing advances they are actually making in finding a cure. Also, the walk for a cure is a great yearly opportunity to get out there for diabetes.
Posted by treesyg, 5/01/2010 2:15:35 PM

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Warrior: Will Cullen, 3, proudly shows off the Superman-style shirt his family will wear on their Walk to Cure Diabetes. Behind him are his parents Matt and Melanie and sister Ruby. Picture: Jeff de Pasquale
Warrior: Will Cullen, 3, proudly shows off the Superman-style shirt his family will wear on their Walk to Cure Diabetes. Behind him are his parents Matt and Melanie and sister Ruby. Picture: Jeff de Pasquale
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08 October, 2008

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